I wanted to have a little time to myself tonight to not think about all the crap that has been on my mind lately, so after the sun got behind the house a bit I pulled my rolling garden seat out of the carport and stationed myself in front of my front flower bed. As I pulled the grass that has grown up amongst my hostas and periwinkle, I realized I’d left my faux pearl bracelet on. Somehow, it seemed like the perfect illustration of the way I feel.
Every day, I’m running into things that interrupt the life that I was feeling pretty good about. Weeds that are ruining the view that I was enjoying very well, thank you. I dig my fingers in, get dirt under my nails, yank the intruders out by the root… but I know that tomorrow there will be more sneaky stuff that I need to get after.
Not only is my mom facing a recurrence of her brain tumor, but my daughter has some kind of respiratory challenge going on that we’re trying to get to the bottom of, and the non-profit agency I work for is merging with another agency and my job is at risk.
So some of the weeds I’m pulling every day are in the form of having to act as an advocate for my mom and daughter and their medical issues. I have found that asking questions and keeping track of appointments and medications is not all there is to being an advocate… I have also had to double-check prescriptions when doctors tell us one thing and do another, I have had to follow up when we are told that chemo appointments will be made and they aren’t, I’ve had to re-order records to be sent from one doctor to another when the promised work hasn’t been done by the office staff, and I’ve had to put my foot down about prescribing something when an actual diagnosis has not been made.
Just this last weekend my mom went home from the hospital with orders that said “no changes to meds” after the doctor who saw her three days earlier had told me himself that he wanted to increase her steroid to help with swelling in her brain. Because of that screw up, mom was immobile and disoriented the day after she went home. Had I not taken it upon myself to tell my sister to increase the dosage to what the doctor said he was going give her (I was out of town at the time) mom could have gone into a coma before we could get in touch with the doctor today to double check his instructions.
But I mentioned pearls, right? I guess what I see as the pearls is the positive attitude I try to maintain through it all. I don’t spend a lot of time stressing about it, I just do what needs to be done. It doesn’t do me any good (or anyone else, for that matter) to dwell on the challenges and wallow in my frustration and feel sorry for myself. Things just have to happen, and decisions need to be made… I just have to put on my pearls and dig in.
Laurie,
You have been on my mind alot lately and I just wanted to let you know that I am praying for you and your family. I am glad that I have gotten to know you and your sister, and also your mom on several occasions. I love this post! Keep up the positive attitude and remember that God does not give us more than we can handle. In all things, He has a reason, which we may never understand. Let me know if there’s anything I can do to lend a hand, an ear, or a prayer. Hugs to you and all of your family. Mischelyn
Keep writing. Sometimes in the writing, things become clearer. Sometimes it just allows you to release some pain, anger or frustration.
I used to think that one day, life would just be ‘normal’, every day, simple sameness. It hasn’t happened yet.
I know that your mom feels good knowing that you are watching out for her. Every patient needs an advocate.
I love you and your family. I wish we could find ourselves settled down enough to actually visit.
much love to you all,
Patt
My pearl bracelet must have fallen off somewhere… I can’t seem to find it. I’m sure it will show up.
Laurie,
I’ll keep your mom, your daughter, and you and your family in my prayers.
By the way, Laurie (off topic, sorry), if you would like a copy of my book, email me your mailing address, and I’ll send you one ASAP. You can just send me a check when you get it.