Mom’s first radiation appointment is tomorrow at 10:30 a.m. I’m so… what? Relieved… and thankful.
But also incredibly pissed that it took three weeks and three days to get to this point. And I know that I shouldn’t look back and say “what if”, but it occurred to me today that when she met with her regular doctor and gave her a list of her symptoms, and the doctor said “none of these are good”, perhaps that doctor should have recommended a CT scan at that time. I mean, if you tell a patient that their symptoms could be caused by a tumor – why wouldn’t you want to immediately rule that possibility out? Instead, she just scheduled an appointment with a neurologist for a week later. And before that happened mom fell and went to the ER and found out she had a mass in her brain.
I guess that’s not helpful thinking, but I need to focus my frustration somewhere, so there it is.
Today was another bad day, worse than yesterday actually. Mom was nauseated all day, couldn’t eat, was not able to get to the bathroom on her own, was in pain all day… her surgeon’s office prescribed an additional pain med, but when she took a couple she immediately threw up.
Thank god my brother is here! I don’t know if he believed my sister and I when we told him that this only happened today. And of course, we are concerned about whether or not this is going to continue past today. If it does – who is going to care for mom when Brian goes home? It’s scary… the way our lives are going to be changed for the next few months.
Oh, my. Is it possible your mom is allergic to the pain meds? If I take anything with codeine (or anything similar) in it, I barf like Linda Blair. I’m going to be concentrating a beam of vibrations on those medical people to find her the right meds to make her comfortable so the radiation won’t be such a trial for her. Gawd.
Congratulations.
My brother has also Glioblastoma for about 2 years now. It is a very tough illness for the family.
All my best wishes for you!
Francisco
Thank you for writing about all of this. I was just talking to Brian today about how I don’t know how to write this down.
I just don’t.
THIS SUCKS.
There. I feel better.
Yes, thank you. I hope it’s as helpful for you as it is for us out here wanting to know the latest. Talking to Brian yesterday was pretty hard and I sent the word out for extra prayers from the Philly faithful. We’re working those God channels — hope no one else is trying to get through now.
Sorry to hear that your mom is sick and not doing well. Best prayers and wishes to you and her for her recovery!
http://cancerfriends.net/discuss-cancer-treatments/